Twenty-one, Or So

“I have plenty of stuff here that can be used. Whenever you have time to look at it. No big rush”.

Another message. Another twenty-one, or so, words gratefully left on my voicemail Friday. I don’t interpret these words to mean anything other than dad reaching out for verbal companionship – for a connection. Words, themselves, don’t really matter.

(As aside here, I didn’t really listen to him – or anyone – as a teenager, anyway, …. but let’s not let that get in the way here. 😃)

These words don’t matter. His intention does. His need for a momentary connection to his son – even if it was in a thirty-second voicemail – counts a lot in his life. And mine. I want him to hear my voice … in person, or recorded. He needs this.

As I’ve written before, it’s difficult for me to answer most times. Life is, well, busy. None of us who are on the forefront of caregiving can set aside our schedules. We want to, but can’t. Even if I had all the time and money available at my over-extended fingertips, it wouldn’t be healthy to commit 100%, anyway. The emotional balancing act in which we engage is challenging. Rewarding, yes. Tiring, yes.

Following each call – answered or voicemail – I do try to see him within the next twelve hours +/-. Not always possible, of course. A good percentage of time my schedule allows it – which leaves a small “bad” percentage.

Thus, that message Friday, sadly. It’s Sunday morning and I felt the “no big rush” empty hours creep into my life last night. Before Saturday’s church service, an unsettled hush occupied my mind. An urgency to see dad without the time to follow-up took the place of prelude preparation and sanctuary service. Granted, this was over an hour before because I arrive early to help open the church. Yet, this didn’t lessen the malaise I felt…

… Initially. I write, “Initially”, because within five minutes of entering through our side doors, my ears caught a very familiar voice coming from our fellowship hall. An elderly, tenor male voice echoing around our large gathering hall was easily recognized as one of Zion’s recently retired clergy. Sitting as a dedicated grandfather … dutifully watching over playful grandchildren was his job at that moment. Neither of us realized another task was at hand.

A casual, “Hello, usually nobody is here …”, turned into much needed twenty-one, or so, minutes gratefully exchanged between old friends as I was the organist/pianist during his long and rewarding tenure at Zion.

“It was nice to see your dad last weekend in church”, began this wonderful conversation between friends. An observation warranted because Pastor Scott attends regularly with his family.

“Yeah. I felt it was a good idea to bring him to late service … and then see if he had enough energy to go to our church picnic afterwards.”

A larger door opened at that point. Not one to the church. One to my conversational soul. One that isn’t opened very often, surprisingly. (Although, I do talk to others on occasion including the current pastor, secretary, and a few good friends).

So many ask about dad – how he’s doing. The, “what’s going on with him?” umbrella-in-passing kinda query. I don’t mind, but a quick, “he’s fine” seems to satisfy questioners as they move on with their lives. I get it. I don’t hold anything against anyone. Lives move and gears grind in the engines of every one’s schedules, families, and jobs.

There was something different with Pastor Scott’s words. Granted, he’s a pastor. With that comes a certain expectation of compassion. This wasn’t it. It was just a normal guy – a good friend sincerely asking about my dad.

… so we talked and laughed. Life as it is in this net of dad’s dementia. No advice given. “It must be difficult for your dad to manage what’s going on inside his brain”. “I think it is?”, was my hesitant reply as I am not sure what path ideas take inside a person’s brain who has dementia. As someone who knows dad, he continued, “I guess he feels comfortable in his own way and is, at least, trying to manage”.

“Yes, he is”, I candidly replied.

This comforting dialog continued for another twenty minutes. Life between a dad and son through the consoling and sympathetic casually dressed clerical collar of a retired pastor. Benevolent brotherhood at it’s best. I could only image dad sitting off in the near distance nodding in agreement as friendly phrases graced my ears. Almost like dad was saying, “It’s ok. No big rush. Believe me. No big rush”, through the words Pastor Scott was speaking.

I didn’t expect to be playing my prelude last night with light-heartedness when arriving over an hour prior. That time with Pastor Scott provided an unexpected education. This journey with dad isn’t about one-way messages on an answering machine. It’s not even only two-way conversations when I am actually able to answer the phone, or take dad somewhere for a treat.

We can bring others into the conversation to help more often. To untangle the net. To help straighten out the bent thoughts and crooked, confusing conversations between a caregiver and “patient”…

It IS an opportunity to allow myself, and others going through this, to be brave enough to ask for specific help – to open up for conversation. Allow follow-ups when the, “What’s going on with your dad?”, questions appear unexpectedly. “Do you have a minute to talk?… I have a few concerns.”, wouldn’t be a bad thing once in a while if the timing is appropriate.

Who knows? Laughter and meaningful dialog may happen?

After nearly three times twenty-one, or so years of my life, it’s still hard not to do everything myself. If this journey with dad is teaching me one thing, stopping to learn, laugh, and listen to another person is a good thing.

Dad would be happy to know I am learning this lesson, finally.

What’s the Good Word?

Dad has a difficult time finding the right words most times. “It’s just not coming to me…”, so often mutters within his struggling conversations with me. Questions or comments in his direction trigger this reply a lot.

This is a symptom of the underlying disease of dementia, of course. Patience rules the moments. I try to get information. “How was your day?”. “Tell me about how you feel now.”. “Are you glad to get out for a little bit?”. I don’t know – even after years – if these are good, or appropriate, questions? All I want to do is stay connected to him as long as I can.

As I struggle to find connecting questions on this journey with dad, I find my inner voice saying, as well, … “it’s not coming to me”. What’s right and proper? A brain, aware and alert most of the time, finds it difficult to locate a quizicle query … an interesting issue to trigger dad’s synaptic senses.

This, probably, is a common frustration for those in my circle of known, and unknown, friends holding mental hands with dementia suffering loved ones. Has to be common? Communication. Conversation. What was once normal, everyday who, where, and why, … is now one way remembrances as blank stares and misplaced whats disguised as whos dominate discussions.

Yet, we love them the same. Even more, I would argue.

My point of all this is … why write it? Why briefly point out dad’s unique, but common, response restraint? Problem finding the right words – the correct, perfect reply.

I know my dad. He’s a perfectionist. Even with his life’s setback now, this trait is still deeply embedded. I do believe he may want to answer the best way he can. “It” may just be that perfect word he can’t process anymore. That perfect word isn’t coming to him.

A son, laughingly must admit, carries the same gene … not to a fault, however. I allow some things to slip by.

What couldn’t get by me was that perfect word this evening. Truly, “it wasn’t”, yes, “coming to me”. This was a moment I felt a connection to dad and he wasn’t even around. Ironically, we planned on his attendance, but scheduling prevented it.

Simply stated, a guest pastor was in attendance at our evening service. I had a moment beforehand to mention how much I enjoyed his remarks at a funeral a few weeks past. As the organist at many a funerals, I heard many eulogies. At this particular service, his words were, well, ….

… and here’s where I got stuck. The pastor and I could have easily been dad and I mired in traffic for a few awkward moments -with a few glaring differences, of course. No dad and son. One pastor and organist. Both, supposedly of sound mind.

However, still one blankly staring back at his friendly guest pastor thinking, “it’s not coming to me..” What’s the proper and right word to compliment a pastor on his exceptional message on the death of a beloved friend, pastor to us all?

As I spoke a few wiggly words, none seemed appropriate. Each worse than one prior. The pastor’s kind, but confused smiles confirmed my suspicions. It was a “good” message? I “enjoyed’ what you said? None lifted itself on angel’s wings, for sure. “Nice job”? As the few minutes swooped into mild embarrassment, we parted ways with no damage done. We’ve been friends a long time. He knows … I know. A little lighthearted banter before worship in his mind.

For me, not so much.

A chance to be dad. To understand how he must be. “Be” in a moment where the right word/phrase isn’t processing. I can’t imagine living in that space 24/7 … especially when in a car being asked questions you KNOW you should be able to answer … just can’t find the words. Or, remember.

It’s been eight hours now. You know, I STILL don’t know what, exactly, to say. It was a lovely funeral. Of all memorials I’ve played, his words are in the top 10%. This is what I ended up saying to him.

That’ll have to suffice. I’m not happy with it. Doesn’t seem enough. What he said about our dear friend was amazing, poignant, caring, and compassionate. With those, I am not satisfied. They’re not what I want to say.

Maybe dad has it right, after all. It may be best to just admit, “it’s not coming to me”, and move on.

Well, in any case, having that connection moment with dad was kinda cool. Dementia has its unique set of problems. It’s nice to know we can share these little problems together.

Together in spirit, that is.

Next time in the car, in a grocery store, or at one of his favorite ice cream stops, … we’ll have another, “it’s not coming to me” moment in person.

It’s anyone’s guess as to which one of us will be waiting for a reply. All good as long as the connection is maintained.

That’s the blessing in all of this.