Tag: caregiving

A Statue’s Seamless Touch

A call came. Not unlike any other from the facility at seven o’clock as the morning sun snuck through my bedroom drapes. An aide from Dad’s place spoke of his distress as I listened with partial attentiveness – not from lack of compassion, however. The five days prior exhausted most of my gas tank. This Friday morning was to be rest. Simply, … sleep. Recuperation. Body repair.

I, truly, didn’t need this distinctive ring.

It was a responsibility call. The aide was asking for guidance. She, clearly, met dad at a medical crossroad – as often happens considering the road on which he travels. Dementia requires navigational assistance. Assistance defined as caring people who help guide the way and clear out as many obstacles as possible.

He had, what appeared to her, a medical issue. “We needed to ask you what you’d like us to do… ?, as she continued to explain his troubles. I realized his situation required my personal attention. Ten minutes later, I found myself – once again – making the very familiar trip on rt. 36 north toward Altoona.

No more than an hour later, we were in an emergency department bay. This time, not as critical as other days, but nonetheless, there. Dad and me … talking over, and over, the recent moments’ events. The hows and whys that suddenly escaped his memory, needing to be repeated to soothe an anxious mind, passing the minutes which turned into two hours. As he finally drifted into a calm sleep, I took the time to slip out. The mid-morning sunlight was a welcome relief on this tired set of bones.

Slowly turning a corner around the ER, I noticed a statue off to my right. On more than one occasion I’ve passed by this way as the ER department isn’t easily accessible from the main lobby. “That’s odd …,” I thought, “… I don’t remember seeing this before”. Sure as the sun was a relief on my weary shoulders and my body was exhausted, this statue didn’t just magically appear.

It’s “The Healer’s Touch”. Rather than try to write summarize what it represents, here is the plaque:

I am not a descendant of the Shona tribe. This, probably, goes without typing. Traveling to Zimbabwe isn’t in my plans and I don’t have any friends who are remotely connected to that area of our world. Up to that moment, my only tie-in to Zimbabwe was a world map hanging in the front of a seventh-grade geography classroom.

A bond did happen at that moment, however. Not the words I read, but from the statue itself. That shiny object caught my eye after all. It was meant to. Not just me … but everyone who walked past. It’s meant for reflection and, of course, to honor the nurses who care for all in need.

For me, who is clearly not a nurse or Shona healer, I stood there – bonded to this statue: one body larger than the other … connected to each other by arms that are, by all indications, hard to see where they begin or end. The artists from this tribe know how to reach into the heart of compassion and caring. In its simplicity, there is no separation. As one suffers and hurts, so must the caregiver meet the patient in that space.

And so it is with Dementia. I needed this reminder. Self-care is important, of course. The old saying, “One can’t do another’s care if not taking care of oneself.”, is important to remember. When call comes in during the early morning hours however, my needs become secondary. When sitting by his ER bedside and the conversation circles back to the same five sentences every eight minutes, my needs become secondary. As he stares blankly at me wondering why the ambulance didn’t take him to his house, my needs become secondary.

Dad was still sleeping when I returned to the ER bay fifteen minutes later. It wasn’t soon after then, attendants took him for CT scans and other testing. Standard procedure for his distress, I assume.

Fortunately, nothing serious came of this visit. We’ll check it off as a fortunate medical mis-step with a mental ramp exit. He received excellent care for about five hours and arrived back in familiar surroundings just in time for a late lunch.

This was one of many he and I have experienced together. During the many visits though, I’ve missed seeing this particular statue. Odd, since my catering business has served the employees there multiple times as well.

This was the moment, the morning, to stop and be reminded of my role in his life I guess…

… and for all us in this role as caregivers to be part of the Shona tribe. Healer’s, possibly, a world away, but seamlessly connected together to each other and to our loved ones struggling with Dementia.

We have an important job to do. They need our affection, compassionate communication, and silence when appropriate. Let’s strive to be their statue. Have your never ending arms rest on their heavy burdened shoulders.

… and always take the call.

Two Paths, Two Falls

Hidden among hills in Western Pa is this waterfall. Not far off Rt 22, heading west from Altoona – about halfway to Pittsburgh – is Buttermilk Falls. Down a bumpy cement road and through only a few rural, tree-shaded intersections, one arrives at this quaint park. It is serene. Mere minutes from the Rt 22 metal melee, a small parking lot invites all to park life away from all its problems.

This is Fred Rogers’ place by extension. Several remains of his grandfather’s (Fred McFeely) estate are visible at the park while Mr. Rogers life and times are memorialized in small wooden plaques along a simple walkway toward the waterfall. The falls themselves are in the Hires Run Valley which is a tributary to the Conemaugh River.

A recent visit here was necessary. Weeks of unexplained delays of plans, expected overlaps of multiple schedules, and usual busyness required something – anything – to free myself from all of it. A 4-day planned vacation fell through. Family matters prevented one day from happening. A personal medical issue, another day. Home repairs and maintenance another. Just did not end.

I know this isn’t only me. Life happens. One drop at a time of little issues then all of a sudden the bucket is full. We’ve all had it happen.

These mind-heavy issues didn’t immediately disappear once my car door closed over a small, shale parking space under a small grove of trees; however, a few deep breaths of forest air during the first ten minutes’ paces sure did help. Allowing the time – between each Mr. Rogers plaque – to empty my bucket by a few drops. Reaching the waterfall forty-five minutes from the start, I can say my bucket was a little lighter. Not much, but a little.

One can walk under the waterfall to meditate, take pictures/videos, or stand there and get relief from a hot, sunny day. Visitor’s choice, as could be said,

The four hour round-trip visit ended with a return back to my normal: Preparation for a busy event week coming up and four church organ services (including a funeral Saturday) this weekend. Life as I’ve known for so many years

Life as I’ve known it ..

… without mentioning, to this point, caregiving for a family member with dementia. “Caregiving” as an umbrella term to cover five years of in-home care and then then, most recently, sixteen months in an assisted living facility.

Yes, I wanted four days away. The emotional struggle dealing with a day-to-day overflowing bucket of emotional ups and downs had reached its crest. I’ve done the best I can meeting his needs. His health and safety are always on my mind. Beginning with a simple wrong turn in his car leading to a dementia diagnosis five years ago, this slow river of mental decline has eroded his solid rocks of reason.

It, really, isn’t any different from thousands of other experiences caregivers have when walking side by side, day by day, hand-in-hand with one walking down dementia’s path. Over the years, we’ve shared all the steps -together. The initial diagnosis and subsequent frustration, loss of driver’s license with understandable disappointment, confusion over simple tasks, and momentary blank stares.

..also wonderful, complimentary words that were rare during those rough teenage years. Frequent phone calls from the assisted living facility stand as a testament to our solid relationship. He has my number firmly implanted in a small brain cell … not to be forgotten at present. We have a connection.

So, this dementia path, for us – for me – is rough. It isn’t ever intended to be an easy one, I believe. It is taken on as an unpredictable, day-by-day, who knows, let’s see what tomorrow brings … and hold each other’s hand path to somewhere. (Ironically, as I type, he just called needing white medical tape – an obsession of his. No worries. We will go out in a few hours and find some).

Four days and an almost full bucket. I did lose a few drops with the help of my good neighbor, Fred Rogers. By all accounts, Mr. Rogers was a great dad. Plaques leading to the falls testify to this fact. He was a wonderful man – as everyone knows.

I wouldn’t trade my dad in for him, however. As things are, I always say we are losing him a little at a time every day, but the other side of reality is getting a great guy. I wouldn’t have said this years ago. We had a tough time.

Being his caregiver and sharing this path with him has been a joy. We’re not at “his” falls yet and I am finding my bucket to be, maybe, a bit bigger than anticipated with him as we walk together.

When alone, however, I have to be mindful of a full bucket. All of us who take care of .. and love those who suffer from dementia, need to provide self-care.

Our path is different from the one shared with our loved one. The old saying, “you can’t take care of someone else if you don’t take care of yourself first”, is so true. Spiritual, physical, and mental health are so important first-and-foremost.

There us a sign at the beginning of the Buttermilk path: “Be the kind of person Mr. Rogers always knew you could be”. I take this to heart.

There are two paths .. two falls. Two destinations. Being at Buttermilk Falls reminded me of this.

Fresh air and Mr. Rogers. Not a bad combination.